What is Synesthesia? How it is Linked Fibromyalgia.

What is Synesthesia? How it is Linked Fibromyalgia.

We usually think of ourselves as having five senses: touch, taste, smell, sight, and hearing. But for some people, it’s a little more complicated. If you have a condition known as synesthesia, you might actually taste things that you see, or feel things that you hear. Or you may even see colors that other people don’t see.

There’s a lot that we don’t understand about the condition, but some people have suggested that there may be a link between synesthesia and fibromyalgia. And you may have heard somewhere that people with fibromyalgia are more likely to have the condition.

But is there actually a link? Are people with fibromyalgia really more likely to experience synesthesia? Let’s talk about what synesthesia actually is. And then let’s look at some of the evidence that may connect it to fibromyalgia?

What Is Synesthesia?

Basically, the things we sense are sent to the brain through a complicated system of nerves. But the sensations we think of as a taste or the way something feels actually occur in the brain. Your brain interprets the data your nerves collect into a sense. And while we don’t understand exactly how, these sensations can get crossed in the brain.

As a result, some people experience things as a combined sense, or synesthesia.

Typically, people are born with this condition. And it usually isn’t until later in life that they learn that they are different from everyone else. But there have been cases of people developing the condition after traumatic brain injuries. That suggests that it has something to do with the fundamental wiring of the nervous system and that changes to that wiring can produce the condition.

One of the most common forms of the condition is something called “grapheme-color synesthesia.” Basically, when someone with this form of the condition sees or hears a letter or number, they imagine it as being shaded a certain color. The color seems to be more or less random, but each letter or number has one. And if you were to show someone with the condition a letter that was already colored, they would see the number with the color they normally associate with it blended into the real color.

But there are also other types of synesthesia. Some people will see colors when they hear music, for instance, or will hear music when they see colors. As you can imagine, it’s a difficult concept to grasp for people who don’t have the condition.

And there’s also a form of the condition called “mirror-touch synesthesia.” People who have this form of the condition have a close association between things they see and things they feel. So if they see someone gets tapped on the shoulder, they may feel a tap on their own shoulder.

Again, we don’t know what causes this kind of synesthesia, but it seems to be linked with higher levels of empathy for other people’s pain. And that may actually be relevant to the question of a link between synesthesia and fibromyalgia.

Synesthesia And Fibromyalgia

Some therapists have reported that a significant number of the people they see with synesthesia also have chronic pain conditions like fibromyalgia. Others have suggested that people with fibromyalgia have a higher level of empathy for other people’s pain, and thus are more likely to have mirror-touch synesthesia.

But, it’s worth pointing out that there has been very little formal study of the link between the two conditions. And a study that tested whether people with fibromyalgia were more likely to experience physical sensations when other people were in pain concluded that they were no more likely than the control group without fibromyalgia.

However, there have been studies that suggest that people with IBS are more likely to have synesthesia. And we know that there is also a definite link between IBS and fibromyalgia. Both conditions seemed to be linked to extra activity in the nervous system. It’s plausible that there is something going on in the nervous system that links these conditions to synesthesia. But there’s not much hard evidence for what that is at the moment.

And a link between IBS and synesthesia is not the same as a link between fibromyalgia and synesthesia. So, while it’s possible that further research will establish a link, but there’s no reason at the moment to think that there is one.

But let us know, do you think there might be a link? Do you experience synesthesia? Is it related to your fibromyalgia? Tell us in the comments.

Source: www.redorbit.com

17 of the worst Symptoms of Fibromyalgia (and How People Deal With Them)

Fibromyalgia manifests itself in different ways for different patients, but most can agree that all the symptoms are life-altering. It’s not always clear how (or if) they can be treated, and the physical challenges can all too easily turn into emotional challenges as the things you used to do become more and more difficult.

We asked our Mighty community with fibromyalgia which symptoms they consider the worst and how they cope with them. If you’re experiencing these difficult symptoms as well, check out the strategies they use, and don’t forget that you aren’t alone in dealing with the hardships of fibromyalgia.

Here’s what the community told us:

1. “Never-ending fatigue. I’m still trying to figure out what helps, but so far, certain homeopathic medicines are working. My online support group helps tremendously! And there’s always Netflix. Cuddles from my cats help, too!”

2. “When I feel like I’m walking through quicksand. The only thing that helps is to take a break for a day and rest.”

3. “To me, the worst part of fibro isn’t the pain/stiffness or the constant fatigue, it’s my non-existent social life and constantly feeling alone/misunderstood. Even on the awful days, I always find some way to cope or I just lay in bed and whine to my pets. But it’s hard to find a way to ‘cope’ with the loneliness and the depression that follows it.”

4. “The worst is the joint stiffness and joint pain I get, the nausea, and being tired all day and then not being able to sleep at night. I’m a huge fan of the heating pad, and keeping hydrated, and taking my days one day at a time.”

5. “The whole body stiffness as if you’ve worked every bone in your body the day before. No way to deal with the pain, but working out does help…. lessens some of the stiffness. I really notice it more when I don’t do cardio. I tell my family I work out to lose weight, which is true, but it’s more so to help with the stiffness.”

6. “When something always hurts, it’s hard to focus. When you never get good sleep, getting through a work day without a nap is incredibly difficult. I use essential oils to help with both. I make sure I get the best sleep that I can and rest when I can.”

7. “Pain in every part of my body! Some days it even hurts to breath. I pamper myself on those days and do only what is necessary. I save a book I know I will get lost in reading, have a few naps, and try to relax my tight muscles to minimize the pain. I cuddle and pet my dogs a lot, too. I live by myself in the Minnesota up-north woods far away from the noise and stress of living in a city. The quiet and solitude help keep me relaxed.”

8. “For me it’s the cognitive issues. I can hide the pain, but when I can’t form words or get lost in familiar places and see the look of pity on faces of others, I want to cry. I used to be confident and outgoing. Now I just want to hide away.”

9. “Worst symptoms for me are the random hand twitches. I deal with them by making jokes.”

10. “Not having an internal thermostat. I’m rarely just a comfortable temp. Always hot or freezing! I try to dress with layers and know where fans and fresh air are when possible!”

11. “Waking up achy like I hiked 20 miles, feeling like I didn’t sleep at all, and feeling like my head is stuck in the fog. It feels like I’m jet-lagged all the time, walking through quicksand with the body aches of the flu… I try to have a positive attitude about the good parts of my life and manage the best I can.”

12. “The inconsistency. One day you may be feeling relatively good and the next day you are unable to get out of bed. Fibro doesn’t care if you have things to do that day; if it is a bad pain day, it is a bad pain day.”

13. “The worst symptom would have to be my loss of self. I worked hard for the life I had. I was happy. But now I feel like such a burden. No matter how positive I am or how much I smile, I struggle with the constant removal of independence. I’m not sure how to love or even like what I’ve become. I do have amazing support from my partner, and I appreciate it it more than he will ever know. Time together will make a difference. So will finding new happy moments and places.”

14. “The worst symptom is a specific kind of pain; it feels as though I’m being stabbed, in random order, with a red-hot electrified knife all over my body. There’s no relief. All I can do is rub my feet/hands/legs/arms, curl up in a ball and wait for it to pass.”

15. “I have good days and bad days, but on the bad days it feels like every joint in my body is screaming. On those days I take a nice long epson salt bath with bubbles and calm music; it always helps.”

16. “Fibromyalgia flare-ups are the worst. The pain is unbearable and it is felt in every joint, every muscle, every nerve. The fatigue is overwhelming, and sleep is often kept to a minimum since the pain is so severe. Flare-ups happen because of stress, weather, overexertion, and unfortunately, sometimes there’s no reason at all.”

17. “Feeling alone. I have found a great online community, and I cherish the couple understanding friends I have.”

Source: themighty.com

 

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