Chronic, widespread pain, muscle spasms and weakness, migraines, morning stiffness, sensitivity to touch, insomnia, and brain fog are recognizable symptoms of fibromyalgia. But these are not the only struggles associated with the syndrome. Here are 6 aspects of chronic illness the doctors don’t share with you.

Shame

Being diagnosed with a chronic illness is nothing to be ashamed about, yet many patients hang their heads when discussing it. How often do you visit the specialist and hear, “Have you been doing your yoga?” or “Are you still eating gluten?” This affects our brain as though we have done something wrong and are being punished.

Loss of Friends

Unfortunately, those with chronic illness find themselves losing more than just their normality of life. Most people only accept excuses for ditching events a few times before they stop asking. I have found that tolerances last from one to three days before people expect you to function “normally.” When you don’t meet those expectations, their frustration grows. Eventually, those friendships fall away, and you find yourself struggling alone. It’s not that your friends are bad people. People just struggle to understand what they’ve not experienced personally.

Medication is a Crap Shoot

Realistically, fibromyalgia has such varied symptoms which affect each person differently. This makes it difficult for doctors to prescribe a magic cocktail of drugs. For the human test dummies, finding a good mix of medication can take years of trial and error. Each medication is wrought with its own set of fabulous side effects: dizziness, dry mouth, weight gain, depression, nausea, vomiting, fatigue. In my experience, any symptom I didn’t already have I gained through the medication. I started Savella in 2009. For six weeks I vomited anything besides Saltine crackers. It was a great way to lose the Prednisone weight, but ended up exacerbating my fibromyalgia symptoms. To be honest, I have been prescribed all three FDA approved drugs. None of them have made a significant difference for me.

Too functional to be disabled but too disabled to function.

Depression

The big D that we hate to talk about: depression. Depression is normal with any chronic illness. Rearranging your world after your auto-immune diagnosis is hard on the ego. Ego demands constant affirmation and appeasement, which most of us get from our families and our work. Chronic illness systematically removes our ability to feed our ego in those spaces. Add in the struggle to maintain housework, cleanliness, relationships, and hobbies and you have fruit ripe for developing depression. I’m not referring to typical sadness- I’m talking about the crying-for-days, can’t-get-out-of-bed, want-to-stay-in-a-dark-hole-forever kind of depression. You know this illness isn’t going to magically disappear. You know the physical symptoms aren’t going to get better or go away. And, quite frankly, it blows.

Discrimination

The other big D we pretend doesn’t exist: discrimination. I once had a boss who, when I shared my disability (and most chronic illnesses are disabilities recognized by the ADA) and asked for reasonable accommodations responded, “You’ll be fine.” Wow! Thanks for letting me know that walking an extra 700 feet won’t put me in bed for three days. How awesome are you?! That, my friends, is discrimination. And it happens. All. The. Time. That same boss proceeded to call out my unpredictable inability to walk quickly, hold a pen, type, or think in team meetings, which was embarrassing and humiliating (hello, shame).

Disability

And finally the third big D: disability. Many chronic illnesses are recognized as disabilities under the ADA. But it is still difficult for many to receive social security disability. Most who do eventually win do so because of a mental health disability, rather than just a physical disability. Fibromyalgia has gained recognition in recent years. Social Security published criteria in 2012, but is still largely difficult to win a disability claim. The symptoms are not consistent across patients, and are largely subjective, which makes them hard to measure and diagnose. This is one of the most frustrating aspects of these illnesses. We are too functional to be disabled, but too disabled to be functional.

Whether you have been diagnosed weeks or decades ago, know that you are not alone in your struggle. More than 125 million Americans are currently living with a chronic illness (5 million with Fibromyalgia). As people continue to shine a light on the after-effects of these illnesses, the aspects of shame and stigma will continue to decrease.

Source: myplaceofserenity.com

43 Symptoms of Fibromyalgia – Anyone With Muscle Pain Should Read This

Fibromyalgia is, unfortunately, a common issue which affects 3-5 million people, or 1 in every five people.

This syndrome is characterized by debilitating pain in the entire body. Yet, chronic muscle pain does not necessarily mean that you suffer from fibromyalgia, as this condition leads to other symptoms as well.

Yet, if your muscles ache all of the time, you need to check the list of fibromyalgia symptoms and see if you need to find a proper treatment or you can rule out fibromyalgia as a potential cause.

Fibromyalgia symptoms:

Muscle and Body Tissues

Mild to severe pain in different body parts
Morning stiffness
Muscle Twitching
Swelling
Tender and lumpy breasts (Fibrocystic breasts, as an overlapping condition)

Stomach and Digestion Issues

Bloating, nausea, abdominal cramps, and pelvic pain
IBS
Frequent urination

Allergy and Sinus Issues

Shortness of breath
Itchy ears and earaches
Ringing ears
Thick mucus
Allergies, sensitivity to molds and yeasts
A runny nose and post nasal drip

Heart Problems

Valve issues
Pain similar to the one during a heart attack
Irregular heartbeat

Sensory Problems and Sensitivity

Difficulty with night driving and seeing in low lighting
Sensitive to smells, light, noise, temperature, climate, and pressure changes.

Sleep issues

Fatigue
Feeling like falling while sleeping
Muscle twitching even while sleeping
Difficulty sleeping/broken sleeping pattern, feeling tired and lethargic each morning
Grinding teeth

Cognitive Difficulties

Language impairments and difficulty pronouncing familiar words
Directional difficulties and recognizing familiar surroundings
Poor coordination and balance
Zone out often, concentration issues, inability to differentiate color shades, and short-term memory.
Burning or tingling in the upper limbs

Hair, Skin, and Nails

Hair loss
Overly-ridged nails or curved nails
Skin that bruises or scars easily or appears mottled

Mental Health issues

Mood swings, irritability without a reason
Anxiety, depression, panic attacks

Reproductive Problems

Loss of libido
PMS and other menstrual problems
Impotence

Other Symptoms

Unexplained weight gain or weight loss
Headaches and migraines
Vision changes
Family history
The sweats
Carbohydrate and chocolate cravings

These symptoms are non-specific, meaning that they can result from other health issues too, so you should not jump to any conclusions yet.

This condition is not easy to diagnose either, as it can be mistaken for other issues, and there are no specific fibromyalgia tests that are 100% accurate.

A fibromyalgia diagnosis requires one to meet the following criteria set by The American College of Rheumatology: